Early Intervention is Essential!

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Connor took his first steps this week in a swimming pool during his aquatic therapy session. Today he attempted to walk on dry land a few times and managed to make it a few steps with light support around his waist. We’re so close I can taste it. He turned two last month. Connor goes […]

Why Parents Are Choosing to Treat Their Kids With Medical Cannabis

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Last year CNN aired “Weed,” a special with Dr. Sanjay Gupta about people benefiting from medical marijuana. The Figi family and their daughter Charlotte were featured because a strain of the plant, now called Charlotte’s Web in her honor, is effectively treating her severe seizures. Charlotte has Dravet syndrome, a catastrophic form of epilepsy. Charlotte […]

A Disorganized Mom Prepares for the Ketogenic Diet

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My son Connor has tuberous sclerosis complex, a genetic disorder that causes benign tumors to form on the organs. His brain has several “tubers” as they are called, and what the disorder is named for. They are the reason he has battled seizures since he was born in March of 2012. He spent five weeks […]

This Mom Can’t Stick to a Schedule

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I am hopeless when it comes to sticking to a schedule. I don’t know how long I have been telling myself that I will start a more organized daily routine, one that sets aside time specifically for writing, dishes, exercise (exercise–hahahaha!), reading with my son and working on his therapy skills. It never happens. No […]

Why Is My House Full of Physical Therapy Equipment?

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A playroom is supposed to have toys. But sometimes things don’t look the way we envision them. My son has tuberous sclerosis complex, a genetic disorder that causes benign tumors to grow on the organs. Connor has brain abnormalities called tubers that cause him to have seizures. He is developmentally delayed in both motor and […]

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